A four-year-old boy was banned from his primary school because of his rare genetic condition.
According to reports, school officials termed the young child as a high risk for infecting as well as contacting the deadly virus.
Despite the fact that the young lad is no more of a risk than other kids, the school refuses to take him in. The shocking announcement comes in light of the school’s decision to resume classes in September.
The young child’s mother, Victoria Henry-Macklin, says that she’s ready to go public with the matter.
And for that reason, she’s calling all ministers to take a look into the issue.Moreover, the 46-year-old mom says that higher officials need to intervene because her son Ryan can’t return to school next month.
Ryan suffers from a rare genetic disorder called Treacher Collins Syndrome.
It is renowned for its craniofacial deformities, leaving people with small jaws as well as a constricted airway.As a result, patients suffer from breathing problems. And for this reason, they require a tracheosteomy- a surgical procedure whereby a tube is inserted in the neck.
Moreover, Ryan’s primary school doesn’t have any spare room to accommodate his device, as per the Government’s guidelines. And for this reason, his mom will have to keep him at home.
The 46-year-old mother also suffers from the same rare genetic condition and hence is desperate to give her child a chance to lead a normal life. She says that he deserves normalcy and needs to go to school on crucial days. Likewise, she described how she’s also written a letter to Gave Williamson, who is the Education Secretary.
At the same time, Ryan’s mother is skeptical about whether or not it will make any difference. She says, “I don’t think anything will change.” However, she feels that she can’t sit back and relax. This is not a problem for her, she says, but one for many parents in the same situation.